Patient Story
Chasing the sunrise
Family overcomes obstacles of living with a rare condition called Au-Kline syndrome.
-
- May 19, 2023
-
282 - 0
Tag:
rare disease
282 
Patient Story
‘The puzzle pieces made sense’
Genetic testing helps a Michigan mom and dad find answers to their baby's rare condition.
-
- September 22, 2022
-
209
- 1
Patient Story
Jameson’s journey
In the quest to treat their 6-year-old boy's rare disease, a California couple finds answers in West Michigan.
-
- February 25, 2022
-
742
- 5
Patient Story
‘Live with a positive mindset’
Though they live under the shadow of Huntington's disease, the Shurlow family runs toward a hopeful future.
-
- June 26, 2020
-
1.7k
- 5
Patient Story
‘She’s tenacious’
Kaitlyn Seykora baffled medical professionals all her life. Just last month, a geneticist provided a diagnosis—one so rare, not much is known about it.
-
- March 9, 2020
-
807
- 5
Patient Story
Uncommon resolve
Pompe disease had no treatment when doctors diagnosed Tasha Veinbergs. Treatment arrived and her future brightened.
-
- September 25, 2019
-
429
- 5
Patient Story
Haylie’s mystery, solved
The Schneider family faced profound questions about their daughter’s developmental differences. Advances in genetic testing finally revealed answers.
-
- April 22, 2019
-
432
- 3
Subscribe to Health Beat
Join our mailing list and we'll deliver our best stories to your inbox, for free!
You have Successfully Subscribed!